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	<title>aha-moments &#187; Cystic Fibrosis</title>
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	<description>Communicate, Catalyze, Communicate</description>
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		<title>The Gratitude Project: My Story</title>
		<link>http://aha-moments.com/2008/08/the-gratitude-project-my-story/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=the-gratitude-project-my-story</link>
		<comments>http://aha-moments.com/2008/08/the-gratitude-project-my-story/#comments</comments>
		<pubDate>Fri, 01 Aug 2008 15:42:26 +0000</pubDate>
		<dc:creator>Bill Sherman</dc:creator>
				<category><![CDATA[Cystic Fibrosis]]></category>
		<category><![CDATA[Gratitude Project]]></category>

		<guid isPermaLink="false">http://aha-moments.com/?p=148</guid>
		<description><![CDATA[As some of you know, I my first sixteen years under the care of a Cystic Fibrosis clinic at the University of Chicago. I spent a lot of time in hospitals under the active care of doctors. Last week, I tracked down one of my primary care physicians, Dr. Lucy Lester, who is now head [...]]]></description>
			<content:encoded><![CDATA[<p>As some of you know, I my first sixteen years under the care of a <a title="Cystic Fibrosis Info" href="http://www.uchospitals.edu/online-library/content=P01306" target="_blank">Cystic Fibrosis</a> clinic at the <a title="University of Chicago Cystic Fibrosis Clinic" href="http://www.uchicagokidshospital.org/specialties/cystic-fibrosis/" target="_blank">University of Chicago</a>. I spent a lot of time in hospitals under the active care of doctors.</p>
<p>Last week, I tracked down one of my primary care physicians, <a title="Lucille Lester's Homepage" href="http://www.uchicagokidshospital.org/physicians/lucille-lester.html" target="_blank">Dr. Lucy Lester</a>, who is now head of the Pediatric Pulmonary Medicine Division. She started practicing medicine in 1980. By that time, I was a eight-year veteran of the CF clinic (and a precocious nine-year old).</p>
<p>I searched the web and found her contact information, I wrote her a letter. I thanked her for care. Her strong spirit had helped me survive my childhood and achieve my current life. I&#8217;m alive today, in no small part, to her.</p>
<p>My letter also included memories of a mutual friend. Dr. Rothberg was my primary care physician and her mentor for many years&#8211;and he was an amazing doctor who never talked down to children and radiated compassion. If I know Dr. Lester, she&#8217;ll probably laugh when she reads the memories.</p>
<p>I never tested positive for Cystic Fibrosis, so they were only able to treat my syptoms rather than diagnose what I had. I’d never had the CF genetic test, because I knew that the local physician would give me just a “yes/no” answer. They wouldn’t look at the results with a researcher’s eyes.</p>
<p>Dr. Lester still actively researches Cystic Fibrosis, Asthma, and other respiratory illnesses. I asked her if she thought access to me or my DNA would help a researcher investigating ways to help children breathe easier.</p>
<p>By the end of the letter, I had revisited my childhood through my eyes as an adult, and I&#8217;d gained a new appreciation for what others had done for me. I finished the letter with tears.</p>
<p>That&#8217;s my first story for the Gratitude Project. Now, I challenge you to go out and do the same. Find someone who shaped you, thank them, and then tell the story.</p>
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		<title>Lessons from a Hospital&#8217;s Waiting Room</title>
		<link>http://aha-moments.com/2008/07/vaccines/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=vaccines</link>
		<comments>http://aha-moments.com/2008/07/vaccines/#comments</comments>
		<pubDate>Thu, 24 Jul 2008 09:58:23 +0000</pubDate>
		<dc:creator>Bill Sherman</dc:creator>
				<category><![CDATA[Cystic Fibrosis]]></category>
		<category><![CDATA[Personal Experiences]]></category>

		<guid isPermaLink="false">http://aha-moments.com/?p=75</guid>
		<description><![CDATA[As a child, I spent a lot of time in hospitals. For over sixteen years, I was treated by remarkable specialists at the University of Chicago&#8217;s Cystic Fibrosis clinic. My family lived in the western suburbs of Chicago, and it meant a 45 minute commute to the south side of Chicago whenever I got sick [...]]]></description>
			<content:encoded><![CDATA[<p>As a child, I spent a lot of time in hospitals. For over sixteen years, I was treated by remarkable specialists at the University of Chicago&#8217;s Cystic Fibrosis clinic<a title="Lucille Lester's Homepage" href="http://www.uchicagokidshospital.org/physicians/lucille-lester.html" target="_blank"></a>.</p>
<p>My family lived in the western suburbs of Chicago, and it meant a 45 minute commute to the south side of Chicago whenever I got sick (which happened a lot).</p>
<p>The cystic fibrosis clinic shared a waiting room with the sickle-cell anemia clinic. You didn&#8217;t need to be a doctor to diagnose these kids. The white kids, generally, were the ones with cystic, and the black kids had sickle cell anemia. Both diseases are written within the childrens&#8217; genes. You don&#8217;t &#8220;catch&#8221; cystic or sickle cell. You&#8217;re born with them.</p>
<p>There, in that bleak waiting room, some children coughed&#8211;with the loose, rattling, emphysematic cough of decades long smokers. Other children cried. Some sat silently, struggling to breathe. Their eyes revealed a deep pain.</p>
<p>In that waiting room, I received a vaccination against prejudice. I learned, as a five-year old, that sick children are just that&#8211;sick children&#8211;regardless of race or gender. This philosophy formed a cornerstone of my personality, and it still shapes me today. I&#8217;m grateful for each breath I take.</p>
<p>It doesn&#8217;t matter whether you&#8217;re a white kid struggling with cystic or a black kid struggling with sickle cell. We sat and played together in that waiting room, happy for each breath and hoping for another.</p>
<p>We shared toys. We waited. We breathed.</p>
<p>What childhood experiences give you a unique and positive perspective on life and social interactions?</p>
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